Consistently excluded: A disability inclusion analysis of Canada’s COVID-19 policies

Consistently excluded: A disability inclusion analysis of Canada’s COVID-19 policies  

Deborah Stienstra, Jarislowsky Chair in Social Work, Director, Life Work Well Research Centre  

& Valérie Grand’Maison, researcher, Live Work Well Research Centre, Guelph University  

Systemic Racism, The Government’s Pandemic Response, and Racial Inequities in Covid-19

 

Systemic Racism, The Government’s Pandemic Response, and Racial Inequities in Covid-19  

Ruqaiijah Yearby (JD, MPH), Professor, Saint Louis University School of Law  

Commentator: Emily Simmonds (MA, PhDcand), Researcher Centre for Wise Practices in Indigenous Health, Women’s College Hospital  

Of Medical Malpractice and Methodology: Health Law Research and the Quality of Clinical Care

Please join us Thursday February 3, from 12.30-2 pm for a free webinar as part of the Seeman Health Law, Policy and Ethics Seminar Series of the Faculty of Law, University of Toronto:  

Of Medical Malpractice and Methodology: Health Law Research and the Quality of Clinical Care  

Michael J. S. Beauvais

Photo of smiling man with leaves in the background
SJD Candidate
Thesis title:
Transparent Youth
Office in Falconer Hall
84 Queen's Park
Toronto, M5S 2C5

My dissertation develops an account of legal obligations platforms and other intermediaries have to protect young people's privacy from their parents in the digital environment. Beyond youth privacy, I am interested in how technologies and law structure and mediate interpersonal relationships. I also research and publish on the intersection of health law and privacy, where I focus on international data transfers and European data protection law in biomedical research.

My doctoral work is supported by a Canada Graduate Scholarship from the Social Sciences and Humanities Research Council of Canada and by a fellowship at the Schwartz Reisman Institute for Technology and Society at the University of Toronto. I am an affiliate of the Information Law Institute at New York University School of Law.

Education
Certificate in Childhood Ethics - Views On Interdisciplinary Childhood Ethics (VOICE), McGill University
Master of Science in International Planning - University College London (UCL)
Bachelor of Civil Law & Juris Doctor - McGill University
Bachelor of Arts in Jurisprudence with Senior Status - St Edmund Hall, Oxford University
Bachelor of Arts in Urban Systems - McGill University
Selected Publications

Books

Promoting the “Human” in Law, Policy, and Medicine: Essays in Honour of Bartha Maria Knoppers (Brill Nijhoff, 2025) with E Dove and V Rahimzadeh (eds).

Book chapters

"Introduction: Honouring the Humanity of Professor Bartha Maria Knoppers" in Promoting the “Human” in Law, Policy, and Medicine: Essays in Honour of Bartha Maria Knoppers, edited by E Dove, V Rahimzadeh, and M J S Beauvais (Brill Nijhoff, 2025) with E Dove and V Rahimzadeh.

“Biomedical Research Policy: Back to the Future?” in Law and Legacy in Medical Jurisprudence: Essays in Honour of Graeme Laurie, edited by E Dove and N N Shuibhne (Cambridge University Press, 2022) with B M Knoppers and R Chadwick.

“Frontline Ethico-Legal Issues in Childhood Cancer Genetics Research” in The Hereditary Basis of Childhood Cancer, edited by D Malkin (Springer, 2021) with K Sénécal, C V Fernandez, D Sinnett, et al.

Peer-reviewed articles

“Open Data governance at the Canadian Open Neuroscience Platform (CONP): From the Walled Garden to the Arboretum” in GigaScience (2024) with A Bernier, B M Knoppers, P Bermudez, et al.

“Whither Health Research: The Missed Opportunities of the Child’s Right to Health” in The International Journal of Children’s Rights (2023) with D Patrinos, R McDougall, and B M Knoppers.

“The Canadian Open Neuroscience Platform—An open science framework for the neuroscience community” in PLOS Computational Biology (2023) with R Harding, P Bermudez, A Bernier, et al.

Data and Tools Integration in the Canadian Open Neuroscience Platform” in Scientific Data (2023) with J-B Poline, S Das, T Glatard, et al.

“A Proposal for an International Code of Conduct for Data Sharing in Genomics” in Developing World Bioethics (2022) with A Matar, M Hansson, S Skolkenberga, et al.

“Bridging the European Data Sharing Divide in Genomic Science” in Journal of Medical Internet Research (2022) with F Molnár-Gábor, A Bernier, M P N Jimenez, et al.

“Streamlining Ethics Review for International Health Research” in Science (2022) with M A Rothstein, M H Zawati, A Thorogood, et al.

“International Coordination of Research Ethics Review: An Adequacy Model” in Philosophies (2021) with A Thorogood.

“Three Decades of Genetic Privacy: A Metaphoric Journey” in Human Molecular Genetics (2021) with B M Knoppers [invited review].

“GA4GH: International policies and standards for data sharing across genomic research and healthcare” in Cell Genomics (2021) with H L Rehm, A J H Page, L Smith, et al.

“A Marathon, Not a Sprint – Neuroimaging, Open Science and Ethics” in NeuroImage (2021) with B M Knoppers and J Illes [invited review].

“Coming Out to Play: Privacy, Data Protection, Children’s Health, and COVID-19 Research” in Frontiers in Genetics (2021) with B M Knoppers.

“Centering inclusivity in the design of online conferences—An OHBM–Open Science perspective” in GigaScience (2021) with E Levitis, C S D G van Praag, R Gauet al.

“Parental Access to Children’s Raw Genomic Data in Canada: Legal Rights and Professional Responsibility” in Frontiers in Genetics (2021) with A Thorogood, M J Szego, K Seńécal, et al.

“COVID-19 Research: Navigating the European General Data Protection Regulation” in Journal of Medical Internet Research (2020) with R Becker, A Thorogood, and J Ordish.

“Modeling Consent in the Time of COVID-19” in Journal of Law and the Biosciences (2020) with B M Knoppers, Y Joly, M H Zawati, et al.

"When Information Is the Treatment? Precision Medicine in Healthcare” in Healthcare Management (2020) with B M Knoppers [invited review].

Other articles

"Implementing the human right to science in the context of health: introduction to the special issue" in Journal of Law and the Biosciences (2024) with B M Knoppers.

“Navigating the Ethical Maze of Genomics in Canada’s Military” in BMJ Military Health (2021) with B M Knoppers and C Boscarino.

“Basta con il biolaw: What about knowledge and trust?” in BioLaw Journal - Rivista di BioDiritto (2021) with B M Knoppers.

Reports

"Children's Data Protection" for the Human Cell Atlas (2022).

“Building the Human Cell Atlas: Issues with Tissues” for the Human Cell Atlas (2019) with E Kirby and B M Knoppers.

Policy interventions

"Submission to the Standing Committee on Industry and Technology Study of Bill C-27, The Digital Charter Implementation Act, 2022" (2023) with L R Shade. (Appeared at Committee on November 23, 2023.)

“Children’s Privacy and Video Games: Comments on Commercial Surveillance ANPR, R111004” (2022) with S Grimes, D Jayemanne, and S Giddings.

“RE: Public consultation regarding data protection and international transfers of personal data to non-EU countries” (2020) with the Global Alliance for Genomics and Health.

Opinion pieces

“The World Health Organization Needs to Craft and Adopt an International Pandemic Regulation” in The Hill Times (2022) with B M Knoppers and D Turp.

“Liberté universitaire: La loi ne peut remplacer le dialogue” in La Presse (2021).

“Pour un traité mondial sur la riposte aux pandémies” in Le Devoir (2021) with B M Knoppers and D Turp.

“Opinion: Canada’s Tax Return System Jeopardizes the Privacy of Millions of Canadians” in The Globe and Mail (2021).

“COVID-19: Who’s Afraid of Data Sharing” in Canadian Science Policy Centre (2020) with B M Knoppers.

“Qui a peur du partage des données?” in Le Devoir (2020) with B M Knoppers.

Research Interests
Charter of Rights
Comparative Law
Family Law
Health Law
Legal Theory
Privacy Law
Supervisor
Committee Members
Sara Grimes (Wolfe Chair in Scientific and Technological Literacy, McGill University)

MAID Bill C-7 Is an Affront to Equality

MAID Bill Is an Affront to Equality

Archibald Kaiser, Isabel Grant, Trudo Lemmens & Elizabeth Sheehy

Toronto Star editorial March 11, 2021

Canada’s legal system has an ugly track record on mental illness: exclusionary immigration laws; involuntary sterilization; restrictive marriage and voting statutes; debacles of institutionalization, deinstitutionalization and criminalization; and casualties of the war on drugs. Our nation has abandoned Canadians with mental illness to poverty, isolation and substandard living conditions. Now, based on a misguided interpretation of equality, Parliament intends to pass Bill C-7 and provide medical assistance in dying (MAID) to those suffering from mental illness.

In extending MAID to persons with disabilities whose deaths are not reasonably foreseeable, Bill C-7 exposes the shallowness of Canada’s commitment to the human rights of persons with disabilities. And while people with mental illness were initially protected, Parliament will further destabilize the equality and security of people with mental illness by including them in the legislation through a sunset provision in two years.

How Parliament and our Federal Government are Playing MAID Politics with the Lives of People with Mental Illness

Our government is asking parliament to ignore its statutory-based commitment to evidence-informed policy making under the existing MAID law

If the majority of Canadian Senators, some psychiatrists, and our government have it their way, physicians in Canada will soon be asked to offer patients with mental illness the option to end their lives as a therapy for their mental health related suffering. The Canadian Senate removed the clause that excluded mental illness from Bill C7, a bill which extends “medical assistance in dying” [MAID] (the increasingly less accurate Canadian euphemism for euthanasia and assisted suicide) to persons who have a disability or chronic illness but who are not close to their natural death. The government just announced it largely accepts the Senate’s amendment for inclusion of mental illness, which would enter into force with a sunset provision of two years. What is extraordinary is how the government thereby allows an unelected Senate to introduce a sweeping broadening of MAID, and this while the House of Commons itself had no detailed evidence-informed review and debate on this specific issue, since it was not part of the original Bill.

MAID town hall: Professor Trudo Lemmens joins CBC's The National Conversation to discuss proposed changes to medical assistance in dying

Thursday, July 23, 2020

Professor Trudo Lemmens is the Faculty's Scholl Chair in Health Law and Policy. His research focuses on the interaction between law, governance tools, and ethical norms and values in the context of health care, biomedical research, pharmaceutical and other health product development, and knowledge production.

Expert Advisory Group Releases Report on Assisted Dying and Mental Disorders

Friday, February 14, 2020

Following comprehensive review of the available evidence, the Expert Advisory Group (EAG) on Medical Assistance in Dying (MAiD) released a report February 13 cautioning that evolving assisted dying policies must not put the lives of Canadians who live with mental illness at risk. MAiD in Canada is for medical conditions with irreversible decline, yet unlike other medical conditions mental illnesses can never be predicted to be irremediable.

Mary and Philip Seeman Health Law, Policy & Ethics Seminar: Matiangai Sirleaf

Mary and Philip Seeman Health Law, Policy & Ethics Seminar

Presents:

Matiangai Sirleaf
University of Pittsburgh, Law School

Race, Fear & Global Health

Thursday February 13, 2020
12:30pm - 2:00pm
Falconer Hall
84 Queen's Park
Solarium (FA2)

Op-Ed by Professor Trudo Lemmens: Canada must learn lessons from Belgium on assisted dying

Friday, January 31, 2020

In an op-ed for the Montreal Gazette, Trudo Lemmens addresses how Canada must learn lessons from Belgium on assisted dying.

He writes:

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